Study Paper No. 1

THE HIV EPIDEMIC IN UGANDA: A PROGRAMME APPROACH
By Desmond Cohen

Table of Contents

Introduction

I. HIV AND AIDS IN UGANDA
A. Transmission of HIV
B. Transmission Projections and Scenarios
C. Impact Projections

II. SETTING PRIORITIES
A. Capacity Development: General Considerations
B. Capacity Development under Conditions of High Seroprevalence

III. UNDP PROGRAMME INTERVENTIONS
A. Prevention of HIV Transmission
B. Economic and Social Impact
C. Caring
D. Strengthening Organisational Structures

IV. OPERATIONALISING ACTIVITIES
A. Programme Approach
B. Allocation of Programme Resources
C. Sequencing Interventions
D. Programme Implementation

References and Biographical note

 

INTRODUCTION

 In February 1992 UNDP sent a Programming Mission to Uganda to advise UNDP on its activities in the area of AIDS for the years 1992-96. A Report was prepared, Uganda HIV and Development Programme: UNDP Strategy For Co-operation, which subsequently became, with modifications, the basis for UNDP's programme in Uganda. This Working Paper is a shortened version of the original mission Report; two short Sections have been excised, that on the General Country Situation and the other on the Overview of the National Programme. Otherwise this Working Paper has been left unchanged apart from a few textual revisions, although much that is relevant to policy and programming for HIV in Uganda could have been included. Rather the primary purpose in issuing this Working Paper has been to make available the mission Report as a demonstration of one model of how to go about such an activity. It has other merits, both as a substantive analysis of HIV in Uganda, and as a statement of appropriate policy and programming responses in a country with high levels of HIV infection.

 

I. HIV AND AIDS IN UGANDA

The HIV epidemic in Uganda has its origins in the early to mid Seventies, although it was not diagnosed as such until 1984. The spread of HIV in the population has been rapid. By the end of 1991, 30,190 cases of AIDS had been reported to the AIDS Control Programme (ACP) surveillance unit, with cases from almost every District in the country. This is thought to be a significant under estimate of the true number of cases as a result of under reporting. Modelling of the epidemic suggests that the actual number of cases of AIDS is some 6 to 7 times greater than reported cases.

In 1987/88 a national serological survey was undertaken to establish the level and distribution of HIV infection in the population. In the event the survey was not fully representative, with gaps in the data for the eastern and northern regions particularly. The survey generated an estimate of an adult HIV prevalence level of 9%, ie. some 800,000 people were thought to be infected. There were wide variations between regions and between urban and rural areas. In the case of urban areas the rate was estimated to be as high as 29% in some regions; much lower, but still significant, in rural areas. Because most of the population is rural [some 90%] even relatively lower rural HIV rates implies high absolute numbers of people who are infected. More recent data from ante-natal clinics has yielded seroprevalence rates of 27% in true urban areas like Kampala, to as low as 3% in some rural areas [with the possibility that rates are even lower than this in some parts of the country]. Using the national serosurvey as the base, and applying the evidence from sentinel sites, it appears that the current numbers infected with HIV are about 1.3 million.

As noted above, the cases of AIDS notified to the Ministry of Health (MOH) are considered to be a massive underestimate of the true numbers. This reflects the coverage and quality of health care in Uganda, with many persons with HIV related illnesses outside the reach of the formal health care system. Many fall back on traditional healers for assistance, and as such are never reported to the MOH. In part also, the continuing stigma associated with HIV and AIDS leads individuals and families to prefer some other diagnosis. Nevertheless, the data on AIDS as reported has some value in permitting analysis of the sex and age distribution of those identified. About a third of the reported AIDS cases are children under 5, reflecting the frequency of paediatric cases. Otherwise there is a bunching of cases in the ages 15-49, with a mean age for adults of 27 years. The elderly and young adolescents are more or less generally free of infection.

Of great importance are differences in the median ages of infection of men and women; for men this is 30 years, but for women is much younger at 25. Not only are women infected at an earlier age, but there is some evidence that infection rates are higher than for men. Why this is so is far from clear, and cannot simply be a reflection of males choosing more youthful sexual partners. Many other factors must also be operating, and these require analysis if there are to be effective policies for prevention, for care and for dealing with the impact of the epidemic on the social and economic system. The gender dimensions of the problem need to be constantly at the forefront of analysis and policy, and not simply, although these are important, because of the problems raised for perinatal transmission and for the general health of mothers and children.

 

A. TRANSMISSION OF HIV

Much is now known about HIV and AIDS and there has been immense progress made in a remarkably short time in understanding transmission of the virus. Nevertheless, there is much that is not known, and there remain major areas of uncertainty. Why women are infected at an earlier age than men is one area where research is urgently needed. It seems unlikely that a vaccine will be discovered, and be available, before the end of the decade, but even then it is improbable that in the conditions which exist in many developing countries, including Uganda, that a vaccine will be sufficient to prevent the continuing spread of HIV in the population. The potential future discovery of a vaccine thus in no way diminishes the need to put in place now effective policies for prevention and care.

Having said this the ways in which the virus is spread are now well understood. In Uganda, as in much of Africa, the major mode of transmission is sexual. Heterosexual transmission is thought to account in Uganda for about 90% of cases, with the other 10% of infections being from mother to child [paediatric] and from infected blood. Securing the blood supply is an important intervention, but given the relative size of the contributing factors in transmission it is of much reduced importance. Thus by far the most significant risk factor in determining the spread of HIV and the resulting size of the population which is infected, are unsafe sexual practices. This is compounded in the Ugandan case by social and cultural factors which lead many men to have multiple sexual partners, and under conditions where neither partner is protected from the virus through the use of condoms. Evidence from Uganda suggests that condoms are infrequently used; and it is reported that only about 5% of women have ever used contraceptives.

There is now a well documented association between STDs and HIV infection, with the probability of infection through sexual activity being sharply increased where STDs are present. The risks of HIV infection are much higher where standard STDs are present. These risks can be substantially reduced, both of HIV and of STDs, where condoms are consistently and properly used. But this requires knowledge on the part of users, a willingness to use condoms, as well as a regular and affordable supply [conditions which are generally not met at present in Uganda]. Studies carried out in Uganda have shown that the presence of STDs in the population has been a significant factor in transmission, as well as confirming the widespread presence in both men and women of standard STDs. It is clear from these studies that STDs are a significant co-factor in the transmission of HIV, and that control of STDs needs to be an important element in any strategy for controlling HIV.

 

B. TRANSMISSION PROJECTIONS AND SCENARIOS

The major forms of transmission in Uganda are identified under I.A, as also are estimates of the scale and distribution of HIV infection and AIDS in the population. It is clear from these estimates, and from the discussion of the processes of transmission, that very little is known with certainty about conditions in Uganda. Nevertheless, enough is known about this issue for it to be possible to model the progress of the epidemic over the next 10-15 years. Bearing in mind that such modelling is bound to be imprecise, and needs to be treated with circumspection. Any predictions have to make assumptions about future behaviour, particularly sexual behaviour, and this is inevitably fraught with difficulties. Changing assumptions does, of course, yield quite different paths of HIV infection and mortality, and quite different demographic outcomes. Of great importance for the future size of the Ugandan population is the response of fertility to rising paediatric and adult mortality, but this is an area where knowledge is very uncertain. Otherwise the most important behavioural assumptions relate to the number of sexual partners, the number of sexual acts per partner, the probability of condom use, the presence of STDs, and the extent of blood screening and blood usage.

Using the national serological survey as the benchmark it is possible to model the future course of HIV infection, and to then vary the important behavioural parameters so as to observe the relative contribution of these to the model projections. Such a set of illustrative projections has been undertaken by the World Bank (WB) [1991] [these are presently being revised to take account of the recent population census which estimated a current population that is significantly smaller than had earlier been predicted]. The worst scenario looked at by the Bank assumes a continuation of present trends, and generates a set of predictions which are highly unfavourable. In this case, by the year 2010 there will be 1.7 million infected adults; the proportion of adult females infected will rise from 13.6% in 1991 to 17%; the number of HIV positive children will double, from 50,000 to 100,000; and AIDS deaths will rise from an estimated 34,000 adults and 20,000 children in 1991 to 115,000 and 55,000 in 2010. Whereas in the absence of AIDS it would have been expected that death rates would have declined, in the presence of AIDS the crude death rate in 2010 is predicted as actually higher than in the late 1980s. Indeed if HIV adult infection is as high as 20% then age specific mortality rates are trebled - being higher for women than for men. Similarly for life expectancy, where in the absence of AIDS this could have been expected to improve substantially over the next 20 years, under the "no change" scenario it is actually lower in 2010 than in 1985. In this model run the total population continues to rise but at a slower rate.

The World Bank explores a number of alternative projections so as to identify and quantify the effects of parameter changes. Some of these changes in parameter values reflect the impact of policies on behaviour, and thus allow some estimation of the effects both individually and in the aggregate. Thus a model run which includes changes in sexual behaviour, increased use of condoms and reduction in STDs, generates a set of outcomes for HIV prevalence, AIDS mortality, life expectancy and so on which are much more favourable. What these estimates do is to illustrate the synergistic impacts of multiple policy interventions which in the aggregate are able to substantially reduce the future levels of HIV infection and AIDS. They also illustrate the crucial role which sexual behaviour plays in transmission of HIV, and how critical for the future of Uganda is the development of effective policies in this area.

Epidemiological modelling is in its infancy, and furthermore the Ugandan database leaves much to be desired. Much, much more research is needed into important relationships of an epidemiological and demographic nature before reaching any firm conclusions. Nevertheless, certain conclusions are more or less well-founded in the available evidence. The present level of HIV infection is high by the standards of anywhere in the world, and there are no signs of it levelling off. HIV and AIDS mortality is much higher than officially reported data would suggest. As the WB model projections suggest there is the potential for even higher rates of HIV infection and mortality in the future. To levels which will reverse much of the improvement in social indicators, such as in infant and maternal mortality, higher life expectancy, and rising living standards.

Extremely worrying is the evidence which supports the proposition that women are more severely impacted by the epidemic than men, and that in the future this gap will widen further. This means that women will lose more healthy years of life than men; that there will be further deterioration in the rate of paediatric AIDS, and that many of the functions which women are expected to perform as both producers and carers are unlikely to be feasible. As noted above, the gender aspect of the epidemic has received little attention, both in terms of its causes, and in its implications for the development of general policies for prevention, care and socio-economic impact.

 

C. IMPACT PROJECTIONS

If epidemiological and demographic modelling are uncertain in their methodology and conclusions, and thus need to be treated with care, then this is even more true when attention is turned to the economic and social impacts of the epidemic. What is now generally recognised is that the effects of HIV and AIDS are certainly not confined to the health sector, but rather that the channels of effects are multiple, and the impacts extend throughout the economic and social system. This being readily accepted it follows that the policies called for by the challenges of the epidemic will be complex in formulation, necessarily be innovative both in content and implementation processes, and require a multi-sectoral approach. It is this conclusion which has guided Uganda in establishing its present AIDS strategy.

A taxonomy of the multiple ways in which HIV effects the economic system is not too difficult to construct. These can be stated in a reasonably comprehensive way, and there is widespread agreement about the channels through which HIV will effect the performance of the economy. When it comes to estimating the quantitative size of the economic effects, and the distribution of these impacts on different types of households [and within households], on different sectors of production [and within sectors], on Government as a sector of service supply and production, then there are immense complexities and difficulties. This being recognised as the position it follows that what can be stated as the probable impact both now and in the future is highly uncertain.

For Uganda at the present it is impossible to go much deeper than generalities about the likely economic and social impacts. That these are already substantial, and will become even more so in the future, is nevertheless demonstrable even given the limitations of data, analysis, and understanding. It is doubly unfortunate that these adverse impacts are being imposed on an economy whose structure has been weakened by decades of political, economic and social turmoil, and which is only now gradually restoring its productive capacities.

We have seen above that HIV primarily effects those in the age groups which are crucial to society as producers, as the suppliers of social and economic support to both the young and the elderly, and as the transmitters of much of the cultural and social values which effectively define a society. Now in trying to evaluate the economic costs of HIV it is clear that once the full contribution of individuals is recognised that standard estimates are inevitably going to be partial and far too low. It is impossible to place an economic value on the multiple and varied contributions of individuals, other than in the narrowest of terms, and attempts to estimate the economic costs of HIV suffer from major limitations. As we have seen many of the contributions of individuals to society have economic and social value but these cannot be established. Even in the narrowest of economic terms these often cannot be estimated, and many productive activities are often excluded on highly dubious grounds from calculations of national production. This is most obviously true of much of the output and many diverse contributions of women in their multiple social and economic roles.

There is a further major conceptual problem with standard attempts to measure the economic impact of HIV, by for example trying to establish the present value of the output lost through the early death of an individual caused by HIV related illness. This approach in effect assumes that an individual's contribution to output is independent of others, which in the case of an epidemic it clearly is not. The costs, narrowly defined in terms of the measured contribution to GNP, will in the aggregate be greater than the sum of the individual contributions to the national output streams. Overall it can be readily agreed that the economic, social and psychological costs of HIV are likely to be very substantial, and much greater than those which are conventionally identified and estimated.

Persons infected with HIV will experience periods of higher morbidity which will effect their productivity. If they are in formal sector employment they may be subject to discrimination, and possibly lose their job. In any case at this stage of the illness they will have needs which are social - their relationship to their family, and their relationship to the community [defined as overlapping sets of social interactions]. Here support which is other than economic will be essential, and yet every bit as important. How to meet these needs under severe resource constraints is one of the major challenges of this epidemic. In purely economic terms, at this stage of the illness, there will be pressure on household resources, which may be diminishing, at the same time as needs will be intensifying. This stage, and the later one of AIDS, will divert resources to health and care at the expense of other less pressing wants. This increases the probability of worsening nutrition for the household, poorer housing, a reduction of schooling for children, reduced levels of health services for the rest of the family, and so on. All at a time when pressures will diminish the resources available to the household, as labour productivity is reduced, and with the certainty that women will be diverted into caring roles and away from productive activities.

These impacts are happening now in Uganda; probably on a wide scale, but in most districts largely undocumented and not measured. But the tip of the iceberg can be observed in the medical and social support activities of many NGOs, who are tackling the best they can a problem which already exceeds their capacities. Unfortunately, Uganda is only at the start of a process of rising needs, social, economic and psychological, which will inevitably intensify over the coming years as more persons already infected with HIV fall sick and die. The conditions observed in Rakai and Masaka are of massive needs relative to available resources, of intensified destitution, of increasing evidence of family dissolution, of the elderly without support, and large numbers of orphans who have multiple needs for food, housing, schooling, training, care and love. Here is the future for Uganda. But the scale of these impacts can still be limited through social mobilisation and more effective policies.

The foregoing can be thought of as the impacts at the levels of the household and the community, but there will also be aggregative effects which will reduce the total output which can be produced. There are the losses due to higher and earlier mortality - the output lost to the economy through death. This will be significant, in terms of the lost contributions of men and women - particularly the loss of the latter, who have such varied roles to play in Uganda. But output will also be reduced through a diversion of savings to "unproductive" uses - particularly into health, and care for the sick. This reduction in the level, and the reallocation of savings to consumption, will take place in all sectors with Government, Business and Households all affected. National output will grow more slowly than otherwise because the savings available for capital formation will be lowered. These negative effects on national economic performance are not yet evident and will take time to come through. At this time it is difficult to predict the size of the losses of potential output, but while these are inevitable as a category, they are not inevitable in their scale. Effective policies for prevention of HIV can reduce the losses of human and non human resources, and thus minimise the adverse general impact on the economic system.

HIV is no respector of social class, and there is some evidence that infection rises with education and income. This seems also to be the case in Uganda, where reports are now common of losses of highly trained and scarce professional human resources. True both of private and public employment, and doubly serious for Uganda given the thinness of it's existing human resource base. HIV and AIDS is eroding an already depleted stock of educated and experienced labour, and as such is confounding present attempts to rebuild national capacity. These losses are not confined to urban areas, but are reported also from quite remote rural districts where HIV prevalence is generally low. The costs are, of course, not simply the losses of human capital that are entailed, but also the losses in terms of management performance as persons fall ill, and the higher health [and other social charges] which fall on employers. But the impacts are much more general than these; HIV and AIDS reduces the quality and the quantity of human resources available to the society, in terms of experience, training, knowledge, aptitudes, commitment - across the board, and in all parts of the country. As HIV spreads to previously low areas of prevalence, as it is presently doing in Uganda, so also do these costs become more general and pervasive.

No discussion of the impact effects of HIV would be complete without some discussion of the likely consequences for the agricultural sector and those whose livelihood is dependent on it. As noted above some 90% of the Ugandan population is rural; agriculture accounts for about two-thirds of GDP, and for virtually all exports. Most output is produced on smallholdings, and women are responsible for some 80% of total food supply and provide most of the labour inputs. This dependence on women's labour, for both food and non-food production, under conditions where higher HIV infection rates for women are observed, is an indicator of the vulnerability of this sector. Women not only account for much of the direct inputs into production but a good deal of indirect ones as well [in marketing, processing, water supply, firewood etc.]. To these functions are added those domestic responsibilities of the household undertaken by women, which are burdensome enough, and on top of these HIV infection and AIDS impose yet further demands.

Since women are disproportionately infected with HIV, and given the dependence of the rural and household economies on their labour, there are inevitably going to be significant and serious impacts. These will not be confined to productive effects, but also extend to those functions which are integral to the survival of households. Under these conditions it is not enough to know that some farming systems are vulnerable to the losses of labour due to higher morbidity, higher mortality, and the diversion of women from productive roles to caring, but also to be able to identify those households which are most vulnerable. There is evidence that some households are already suffering extremes of destitution, eg. in Rakai, under conditions of high seroprevalence. Other regions of the country, such as Apac and Lira Districts, where poverty is persistent and widespread, will become even more vulnerable if their HIV infection rates approach those of Rakai and Masaka. In part the policy problem is to avoid this outcome through effective programmes of HIV prevention. Whether or not HIV transmission is reduced it is crucial that vulnerable households be identified, their needs be established, and structures be created for delivering the goods and services they will require for survival. This is true both for the urban and rural populations; but in neither case will it be easy to identify the poor and most vulnerable households.

There is rather more information available about farm systems which are vulnerable to labour loss, together with data on particular crops where production is threatened. Tea, which is a minor crop, is especially vulnerable given its need for female labour inputs which are continuously applied. Coffee, which is the main export, seems also to be vulnerable to labour loss. Matooke [plantain], which is the main staple food for most of the population, seems already to be effected by falling labour supplies. Some Districts are especially vulnerable at the present, particularly those with high HIV infection rates, such as areas to the west and north of Kampala [together with Rakai and Masaka]. But all such estimates are based on fairly superficial economic data and analysis, and it would be unwise in these circumstances to base policies on these. What is not in doubt is that HIV poses a major threat to the maintenance of food and non-food output, so as to threaten much of the rural population. These impacts will extend well beyond the rural sector, given the interactions between the rural and urban economies [in terms of labour flows, food supplies, remittances etc.], and even into international economic relationships [given the dependence on a narrow range of export crops for the foreign exchange needs of Uganda]. This is an area of so over-riding importance as to be a priority for policy; but policies need to have a firm foundation of factual data on production conditions. It is not presently the case that such information exists; efforts need to be directed now to remedying this deficiency.

One sector is already bearing the brunt of the HIV epidemic; unfortunately for Ugandans the health care system is unable to cope with even the present level of demands. This is unsurprising given the deterioration of the system in the 1980s. Years of neglect and underfunding had by the middle of the decade turned what was once a comprehensive and effective provider of services - with integrated hospital and primary health care - into one of crumbling buildings, weak management, inadequate [if any] supplies of drugs, and a professional and technical staff which in large numbers had deserted both the system and the country. In spite of the attempts made in recent years the health system remains underfunded, understaffed and underprovided, such that rehabilitation will take many years to achieve. Not only is the health care system faced by growing demands from persons with HIV related illnesses, but it is also having to deal with a set of intensified health care needs caused by the collapse of many other programmes over recent decades [such as malaria and TB, where control programmes more or less ceased]. Many hospitals do not have enough beds, drugs and protective equipment to take care of their ever increasing numbers of patients. For example, Lira District Hospital has only 4 doctors to cater for a population of 500,000.

It is natural that HIV infected individuals and their families turn to the acute care system for help, and seek medical attention and drugs which they hope will alleviate their problems. But in doing so they add to the problems of meeting health needs generally in Uganda and in part divert resources away from treatable and curable medical conditions. This is evident from data on hospital admissions, where as much as two thirds of beds are occupied by AIDS patients and/or those admitted with illnesses such as Tuberculosis (TB) [a common opportunistic HIV infection]. This state of affairs is as much true of Government hospitals as it is of the private sector. A state exists where the care of patients with HIV related illnesses, particularly in hospitals, is crowding out other patients in ways which cannot be considered optimal from the national point of view. That this should have occurred is reflective of many factors; a health care system which at all levels already cannot cope with demands and which has been faced over a very short period of years with large scale growth in HIV and AIDS related pressures. Such processes have faced the MOH with problems it does not have the capacities to meet - neither in medical nor non-medical resources. In the event much of the burden of health care has shifted to the private sector, which is itself now overburdened, or is simply not being met at all by the modern health care sector. There is much evidence that many HIV infected persons are in receipt of little or no care from the formal system, and have turned in many cases [and in large numbers] to traditional healers. Although Uganda has been at the forefront of the national response to HIV and AIDS in Africa, it is disturbing to note that there is no STD control programme in place. This is particularly worrisome given the role of STDs as a co-factor in the spread of HIV [noted above]. What is needed is the development of a comprehensive STD programme as a matter of great urgency, but this will require putting in place a complex set of human and non-human resources to be effective.

The present position in terms of health care provision has little to commend it. The system cannot cope with present demands and is therefore doubly unable to deal with the projected numbers of HIV infected persons. There is no alternative to organisational reforms and the development of innovative ways of meeting the real and genuine needs of the population. To a degree these reforms have already been implemented, in some parts of the private system, where part hospital-based and part home-based systems are already operating. What is needed is an extension of what are currently small scale and pilot community based schemes to a national programme. One which is sensitive to the relative costs of alternative health provision and linking both prevention and care in the community. Here lies the challenge; but it is one which has to be faced sooner or later.

 

 

II. SETTING PRIORITIES

 

A. CAPACITY DEVELOPMENT: GENERAL CONSIDERATIONS

UNDP activities have as their target the building of national capacity, and at first sight this seems to be such an unambiguous concept as to need no further examination. It is as if it is self evident that this is desirable as an objective. But this presumption leaves open many important issues. At the minimum it can be assumed that donor activities aim to strengthen national capacity in ways which permit a country to achieve a preferred [better] level of development. Trying to achieve this objective seems reasonable enough as a guide to the selection of those activities which are desirable and worth supporting, and as an indicator of what ought not to be supported. But there are many problems in practice with this simplistic approach to capacity development.

  1. Resources are limited so choices have to be made as to what activities are more or less important. Who defines priorities, and by what criteria are some activities given preference over others? It is unlikely that the exercise of preferences by politicians and policy makers will coincide with the selection of capacity building activities which maximise development. Indeed, and fundamental to conflict between preferences and the selection of activities, will be dispute as to the relationships between capacity building and development in general, and between particular initiatives and the achievement of selected development targets.
  2. We have defined in an unambiguous way the recipient of the additional resources as "the country", and in the case of UNDP this is assumed as identical with the government of the day. UNDP deals mainly with governments, and issues of representativeness [how government came to power; does it observe civil and political rights, does it have any or much commitment to developmental objectives, and so on, may not be considered relevant]. What indeed ought to be the attitude of a development agency such as UNDP in its dealings with a government which is terrorising a segment of its population? Destroying national capacity in the process, as well as infringing basic human rights. Or to take the example of Uganda, what is the judgement to be of a government which allocates some 40% of its Budget to military expenditure, under conditions where real expenditures on health and education together in 1989 were only a fifth of fiscal allocations in 1970? On a per capita basis health expenditures were only 16% real in 1989 compared with 1970; for education the decline was even worse to 13%. Are such data to be taken as indicators of government preferences; and can it really be the case that internal and external security needs always override social and developmental priorities? Certainly such revealed allocations of budgetary resources against social sector expenditures in Uganda both contribute to the economic and social problems the country faces, and simultaneously constrain attempts through capacity building to ameliorate these.
  3. What indeed is meant by "preferred level of development"? Does this mean a higher level of GNP? Is it a matter of interest how this higher level of GNP is achieved [by paying low wages to labour and banning labour organisations]? Or through policies which lead to environmental degradation, both short term and long term [threatening the sustainability of the process]? Are the benefits of economic growth fairly distributed or do these accrue to an elite which abrogates the benefits of GNP growth for uses which have low social value? Or is there an acceptable set of development indicators which are the actual and real foci of government activities, with which capacity development can be aligned?
  4. Is the discussion couched in terms of the short term, or is it implicit in the process of capacity building that policies are always about sustainability? But this simply raises a further set of very complex questions. These run like this. Development is a process which takes place over time, and can be judged as beneficial where a set of social indicators can be shown to have shown improvement. There may be problems in getting agreement on what these indicators are, and there will certainly be important issues which relate to the conditions surrounding the achievement or non-achievement of the selected indicators. Also problematic is how to deal with the weighting problem, ie. achievement of some indicators and non-achievement of others. But it could, of course, be precisely those countries [governments] who are generally non-achievers who are most in need of capacity building activities. It may be the lack of capacities, whatever this means, which prevents development as defined and measured by social indicators.
  5. The object of donor technical assistance is to support and strengthen conditions in which a country can develop in a socially acceptable way, so that over time the need for transfers of resources from outside are diminished [not necessarily to zero]. In this case the meaning of sustainability, as far as capacity development goes, is as follows. Resources are made available to a country to meet those needs which are essential for development, but in a manner which over time leads to domestic changes which make the transfers no longer necessary. Transfers which are capacity building do not generate a continuing dependence on external support. This has to be one of the most important criteria to apply to TA. Only if this condition is met can capacity building unambiguously be thought of as desirable.
  6. At the core of the problem is not just what is meant by development and how it is measured, but issues of how best to bring development about. There are only too many theories, too many ideologies, too many special cases - and too many interest groups, both in developing countries, in developed countries and in international organisations [including UNDP]. At any one time there may be a dominant set of beliefs, even occasionally some evidence to support these, which sets the agenda for TA and other assistance, such as those policies currently peddled by the World Bank and the IMF. These beliefs will often define what TA is actually on offer, who is delivering it and to whom, and under what conditions. Over time beliefs will be modified, relative positions of governments and organisations change, and with it the concepts and practices of capacity building [note that this is never a single valued construct but is itself one which in practice takes many forms].

 

B. CAPACITY DEVELOPMENT UNDER CONDITIONS OF HIGH SEROPREVALENCE

Figure 1 ( not available) sets out in a very simplified form a structure for thinking about capacity building in Uganda - a country facing an epidemic with all its consequences [as identified in I.C above]. There are disadvantages in setting out the problem and the choices as in Figure 1, not least in that doing so suggests that the relationships are linear and uni-directional. They clearly are not, as will be seen later. Also implicit in this representation is the assumption that we possess sufficient understanding of what is an immensely complex set of inter-actions as to be able to delineate these into separable categories. This is acceptable, perhaps, as a device for assisting exposition of the problems and the choices, but cannot in any way be thought of as descriptive of actuality. What the Figure does is to place the policy problem within a framework which is standard for economics, but this does not prove its suitability for analysing the problem at hand. Time will tell if this way of presenting choices is useful and adds to our understanding.

The issue is that described in II.A, ie. how to establish a set of activities that will assist Uganda in developing those capacities which will help it meet the severe socio-economic problems raised for the country by the HIV epidemic. Not in any detail, of course, but in very broad brush terms, and building on the description of the present and future position in Uganda as outlined in Section I.

Final Targets

It is perhaps easiest to start with the Final Targets, the achievement of which is the purpose of development policy. Those identified in Figure 1 are not intended to be comprehensive, but they are the important ones. These include those targets which are most threatened by the HIV epidemic [both now and in the future]. In the ordinary course of events it would have been expected that various mortality indicators would improve, and in doing so raise life expectancy. The HIV epidemic makes it unlikely that this will occur, and that instead infant and maternal mortality, and adult mortality, will be raised, and life expectancy probably fall. Similarly with poverty, where the probability is for an increase in destitution [with accompanying worsening in other associated indicators of the standard of living, such as housing and nutrition]. The overall rate of economic growth would be lower than otherwise, with significant losses of potential output, and the external position of the economy be weaker - all because of unfavourable impacts on the level and rate of change of labour productivity, and lower rates of capital formation [both in physical capital and in human investment].

All of this was established in Section I, and in some senses from the viewpoint of meeting the development challenge of HIV and AIDS we are not so much interested in Final Targets as such, but in the complex ways in which these are made unattainable by the epidemic. Rather the focii of policy interventions are what are called in Figure 1 Intermediate Targets.

Intermediate Targets

Three categories have been identified as being of over-riding proximate importance; these are the Rate of HIV Transmission, the Care of Infected Persons, and the Mitigation of Adverse Social and Economic Impacts. These are probably not all of equal social weight, and it would certainly be possible to argue that reducing the rate of HIV transmission ought to have priority in the allocation of resources [and in capacity building activities]. It would not be difficult to make this case, given the scenarios outlined in Section I.B. Far and away the greatest benefit in economic and social terms will come from those activities which reduce HIV prevalence, through the minimisation of future social and economic costs. It could also be argued that some of the effects, particularly those on macro-economic performance, will occur later and are thus perhaps less urgent. This is partly true, partly untrue, since some of the adverse economic responses are already being experienced in Uganda.

What is undoubtedly the case is that these Intermediate Targets are interconnected; thus, a mitigation of the economic losses caused by the epidemic will entail a higher level of resources for meeting the care needs of the infected and affected populations. Similarly, a reduction in the rate of transmission of HIV will reduce the absorption of resources into health care and raise the rate of return on human investment [adult mortality will be lower, and people will be productive for longer]. Again more will be available for meeting the needs of the poor and their dependents [there will be orphans and dependents anyway who will need care, education and socio-economic support]. More generally, since mortality will be lower where HIV transmission is reduced, there will be a greater capacity nationally to plan for the epidemic and to implement activities in all areas of policy and programming. Developing systems of care is more than just delivering support and resources to those in need [needs are complex, and not simply and not only economic], but also become the mechanisms for the social mobilisation which is needed for achieving the other two Intermediate Targets. Prevention of HIV transmission and care in the community are indissolubly related. In a nutshell; all 3 Intermediate Targets are important in themselves and need to be pursued, but they are also mutually self-supporting.

Herein lies the case for capacity development which is multi-sectoral. But two further points need also to be emphasised. Firstly, the process of capacity building is also concerned with maintaining capacity. The point has just been made that the HIV epidemic reduces national capacity through erosion of the human resource base, and so exacerbates the direct impact of the epidemic through a downward process of cumulative economic decline. Reducing HIV transmission through effective policies for capacity building slows, possibly halts this process, and at the same time helps to maintain the national capacities for management and organisation of national resources. Even in relatively simple monetised economies there exist important linkages at the levels of production and of markets [both factor markets and output markets], such that there will be adverse spread effects of the epidemic on the economic system which need to be contained by policies and programmes.

A second important point is also being made here, which in some sense is in fundamental conflict with the case made in II.A.4. Capacity building is generally concerned with assisting the development process in ways which are usually measured by improvements in social indicators. But the objectives of capacity building are different under the conditions of an epidemic such as that being experienced by Uganda. Here the policy problem is how to prevent, or limit, a deterioration in the level of development, with capacity building objectives seen in an entirely different light. Success may be gauged not by the increment of improvement in social indicators, but by the degree to which deterioration in these has been minimised. In these circumstances the whole process of project design and evaluation needs to be re-assessed. Thus, for example,to see income generation projects as a means of preventing declines in living standards under the impact of immiseration, rather than the conventional approach where projects are selected in terms of their ability to raise factor productivity and incomes.

Interventions

These are multi-dimensional activities which are capacity building. These could be about maintaining national capacity, or its enhancement. Thus a programme of workshops for different professional groups employed both by government and NGOs which aimed to improve knowledge of the HIV transmission process, and/or its social and economic impacts, would generate new insights and improve economic and social performance. These activities could be aimed at raising the efficiency of existing interventions, through for example training in management and organisation, where the aim is to improve the use of resources. Solutions in this area could themselves be innovatory, and at the same time add to domestic capacity. Thus existing NGOs, which are too small to provide internally all the skills and services they need, such as financial control and project evaluation skills, could look to other more specialised institutions. The latter might be in the public or private sectors, and the process of capacity building be about the appropriate development of service institutions where these are currently missing or ineffective. The possibilities for organisational innovation are legion; that these will be important is also self evident. Again we are back with issues of efficient resource allocation, and the need to raise factor productivity - in these cases by removing X inefficiency [the failure to maximise use of resources caused by management and other internal practices which are sub-optimal].

In evaluating national needs for capacity building, it is important not to misread signals which apparently support further allocations of resources to a particular activity. This may be best understood by looking at the example of the Kampala AIDS Information Centre. This was established to provide HIV testing and counselling services. It is about to extend its activities to other parts of the country, in response presumably to felt needs. Most of its costs are met by USAID, and there is effectively no cost recovery. An HIV test costs currently some $12 US, at a time when per capita health expenditures in Uganda are presently a mere $3 annually. Under what circumstances can this allocation of resources be defended? A case could perhaps be made, along the following lines. An HIV test and its associated counselling, whether the result is negative or positive, leads to such changes in behaviour as to prevent further infection [of say "n" persons]. If this is so then perhaps a case can be made for subsidising HIV tests at the current cost. But the case needs to be substantiated by evidence and cannot be assumed. In this example the existence of unmet demands [indeed any demand] does not prove that creating additional capacity, in the form of testing centres and in training more counsellors, is necessarily justified. Of course other arguments in favour of HIV testing centres can be made which do not depend for their validity on demonstrating any effects on sexual behaviour.

This example raises two important principles. Are resources currently being efficiently used, and does the existence of unmet demand act as an efficient signal for further resource inputs? Both of these need to be considered in decisions on future capacity building activities.

No case can be made "a priori" for or against private of public sector interventions, and in practice there are activities where in particular circumstances either or both are best able to perform. Certainly the effectiveness of certain interventions is constrained by the weakness of public provision, irrespective of whether the intervention is by an NGO or by government. A telling example of this has been the enormous decline in the quality and quantity of public educational provision in Uganda; at the present only about one-third of the relevant age group completes primary education, and very few children proceed to later stages of education. Something like one half of the total Ugandan population is functionally illiterate. This decline in educational achievement over recent decades severely constrains what can be done through policy interventions in the case of all three Intermediate Targets. Such a state of affairs not only constrains what activities can be undertaken but also requires that these factors be taken into account in their design and implementation. Thus any Micro Projects to combat AIDS have to assume as a basic fact that the target population will not be able to meet sophisticated project appraisal and evaluation requirements, and will require intensive assistance by way of training in management skills etc. Similarly with activities for reducing HIV transmission where reaching the population with relevant messages, and engaging them actively in sustained behaviour change, will entail quite different strategies [and be much more complex in design and in processes of implementation].

The final point relating to capacity building, which will repay emphasis, is that most of the population is rural, so that the balance of resource allocation in respect of all 3 Intermediate Targets needs to be focused on this group. All of the forces operating in Uganda will bias programmes against rural populations, for reasons which do not need to be explored here. The potential for disaster, both economic and social if this urban bias is not addressed, is potentially enormous. Similarly, with the gender dimensions of HIV; as we have seen in Section I.B there is an over-riding need to address all issues from a gender perspective. It is perhaps enough to reiterate that the single largest input into agriculture is women's labour, that this is the scarcest factor of production, whose availability for all uses in the society will become increasingly problematic. How to respond to the needs of women must be a major element in any choices relating to capacity building, and to resource allocation generally.

It can be concluded that the overall objectives of capacity development in Uganda, under conditions of high seroprevalence, are -

1. To improve the functioning of existing institutions through raising their efficiency in using resources.

2. To generate new insights and develop new skills in understanding and responding to the challenges posed by the epidemic.

3. To replicate those approaches and institutional structures which are successfully meeting the existing challenges to other institutions and areas of the country.

4. To support innovatory responses to HIV in all of its manifestations, and to strengthen organisational developments, in both the public and private sectors.

Knowledge Base

This is fundamental to any policies of capacity development for any purposes. All countries are resource constrained, and Uganda more so than most. Over recent decades there has been immense deterioration in the economic and social infrastructure, so that effective responses to the HIV epidemic are made doubly difficult. Even more important then in these circumstances to ensure that what is done is well done. Implicit in the approach outlined above is the assumption of known links between Interventions and Intermediate and Final Targets. In part the problem is that these linkages are only imperfectly understood. This may be because a knowledge base has yet to be established, or that where this exists it is not being effectively used.

In part, knowledge and understanding are independent of the activities being followed, and in part these are the outcome of activities. One example will suffice. The focus of much effort presently in Uganda are IEC activities to change sexual behaviour, since this is seen by Government and others as the only effective way to slow transmission of HIV. It would seem obvious in these circumstances to relate IEC programmes to what is already known about sexuality within the cultural context of Uganda. It is in fact the case that Uganda for many reasons has available a good deal of research on these matters, which ought to have informed policies for IEC. But there is little evidence that in fact these sources have been used in the formulation of policies, and in the development of interventions. Much of the IEC activity seems to have been unproductive, in the sense that sexual behaviour has not been changed in appropriate ways. There is some evidence of both poor evaluation and ineffective monitoring of IEC programmes, which has in turn led to weakness in learning the lessons of what works, and what does not.

Capacity building has to be firmly based on what is known about economic, social and cultural structures, if it is to be effective. Where this knowledge of conditions, and structural and behavioural relationships is inadequate for effective policy making, then it will need to be addressed. In part capacity strengthening is about developing insights - without understanding there can be no effective policies. Such insights cannot be assumed to be present, particularly as in the case of an epidemic such as HIV, where new analytical frameworks have to be developed and tested against experience. In the case of Uganda the early learning process is over; and now is the time to ensure the full and rapid integration of experience in policies for capacity development.

 

 

III. UNDP PROGRAMME INTERVENTIONS

 

OPERATIONAL PRINCIPLES

The general principles which should guide UNDP have been established in Section II on Capacity Development. These principles, in conjunction with the analysis of the HIV epidemic and its probable socio-economic impacts as detailed in Section I, set a framework for the general allocation of UNDP resources. But important as these principles are for efficient allocation of resources they are insufficient for the determination of priorities and spending decisions. The definition of operational activities requires the development of additional principles, and the application of these in taking forward a programme for UNDP assistance to Uganda.

The following are important -

  • The knowledge base for interventions in many areas is imperfect and inadequate, such that a crucial initial activity will be to establish such a base. It is an important role of the Uganda AIDS Commission to define research priorities, and to direct resources into consultancies, studies, task forces etc. The output of such activities must then inform policy formulation and the development of specific interventions.
  • Policy making is a continuing process. Priorities will change because governments come and go; because the internal and external environments change; and because of learning effects, ie. the internalisation of experience and the embodiment of this in policy.
  • It follows from the foregoing that the establishment of firm allocations of UNDP resources for the period 1992-96 is neither desirable nor optimal. What are feasible objectives at this point in time are broad indications of priority areas, and identification of initial activities. In effect, what is proposed is a system of contingent allocations, where the specific activities should reflect changing needs and improved understanding [what works, what does not work]. It is important to note that a programme for UNDP requires a framework which is more or less determined; it is the activities whose relative balance should be adjusted during the life of the HIV Programme, through a process of consultations, taking into account learning effects, changing needs, and so on.
  • UNDP resources are limited so it is vital that these be used to maximum effect. This means, in consultation with the UAC, the identification of the points in the economic, social and political systems where activities can exert their greatest leverage; can induce changes in behaviour and attitudes; shift allocations of resources to areas of greatest need, and support appropriate institutional development. In a word, the activities of UNDP need to be catalytic. Programmes must be concentrated on the essential problems posed for Uganda by the HIV epidemic. In part, this requires a new focus - to see problems and their solutions in different ways - together with an intensification of efforts in respect of all three Intermediate Targets. Critical to achieving a new vision is a more general recognition of the developmental relationships of HIV, and the strengthening of activities for planning for, and meeting, the expected social and economic impacts.

 

PRIORITISATION OF PROGRAMME INTERVENTIONS

A. PREVENTION OF HIV TRANSMISSION

Certain features stand out clearly in the present efforts to reduce HIV transmission, and there are important matters here which UNDP needs to address. Much has been done to increase awareness in Uganda, and many activities are underway and planned in this area by government, NGOs, UN agencies, bilateral donors, and so on. Three observations merit separate attention -

  • The presumption that awareness is generally high is almost certainly unfounded, and the admittedly partial evidence of the Mission field visit to Lira and Apac Districts suggests that there are problems in this area still to be addressed. Regions which currently have relatively low infection rates, and which for other reasons are difficult to access, are in need of communication activities to develop awareness at all levels about HIV transmission and its prevention, and to raise understanding of the deadly nature of AIDS. It is certainly appropriate for UNDP to assist others, such as UNICEF, in the identification of needs in this area, and to collaborate in the development of suitable forms of programme delivery, including strengthening institutional structures, training, etc.
  • There is little evidence for Uganda that sexual behaviour has changed in the ways appropriate for a reduction in transmission of HIV. Increasing awareness has not been sufficient to induce sustained behaviour change, so how to bring this about remains the core of the problem for reducing the rate of transmission. There is work proceeding currently in this area, including a Report which is due from AIDSCOM, and there is the development of new approaches presently underway at Kitovo Hospital. Others, such as UNICEF and DANIDA are active in this field. It is clearly appropriate for UNDP to collaborate with others in identifying why activities for behaviour change have had such little success; to support programme development, probably on a pilot scale, and to then establish joint programmes for training and other activities.
  • Doing the foregoing would certainly be worthwhile but in crucial respects would be inadequate to meet the challenge. A point which is emphasised in Section I is the absolute need to establish a gender sensitive approach to this issue. Questions were posed above of why women are infected with HIV at a younger age than men, and why apparently there is a higher rate of female infection.

At least three directions for UNDP activities, of great importance, follow from these observations on the roles of gender in relation to the epidemic.

a. What are the social, cultural and economic conditions which explain the gender biases in HIV prevalence? This requires detailed studies, either separately by UNDP or in conjunction with other agencies with interests in this area. It is obvious that any approach to this question would need to address not simply behaviour change but also, and crucially, the formation of behaviour.

b. How can women protect themselves from infection? The behaviour change activities undertaken in Uganda have generally not addressed this question, but have concentrated on the ways in which men through their actions can reduce their infection rates. Thus activities have concentrated on matters such as reduction in the numbers of sexual partners, and use of condoms. Whereas most women in Africa have one and only one partner, and have little or no control over their male partner's sexual activities, and so are not able to demand changes in behaviour and insist on the use of condoms. Here there is a major role for UNDP, and one which must have high priority. The issue has received little or no attention from the programmes designed and delivered by WHO, and has been similarly neglected by the Uganda ACP. The development of understanding of the ways in which women can protect themselves from infection; the embodiment of such understanding in programmes for behaviour change, together with the establishment of service delivery activities which make it possible for women to protect themselves from infection. All are absolutely crucial for success in reducing the rate of HIV infection in Uganda.

c. Unless a. and b. are successfully addressed as matters of extreme urgency, then it is difficult to see how Uganda will be able to cope with the immense problems caused by the epidemic. Women, as we have seen in Section I, are central to almost everything - the care of the sick generally, not just those persons with HIV related illnesses; the maintenance of food and non-food production; the care and support of children and elderly dependents, and so on. It cannot be said that the crucial role of women in the economic and social life of Uganda, and the degree to which they and their contributions are threatened by HIV, have been taken on board. UNDP has a ensure that in its programme for Uganda, through consultations with the UAC and other partners, that these failures of programme design and delivery are rectified. It follows that not only must the gender biases in transmission be addressed, through changes in analysis, policies and programmes, but that efforts be directed into the assessment of the problems of high female morbidity and mortality for the economic and social system. Both aspects of the issue are important and critical areas for UNDP programme support.

There are four other areas where UNDP could have a role in relation to transmission of HIV, possibly of secondary importance. These are -

d. In the development of a programme for STDs which, as noted above, have been identified as a major co-factor in the transmission of HIV. Several agencies, including WHO, USAID and possibly the World Bank, are interested in establishing a programme for STDs. There is effectively no programme at present in Uganda, and given the state of general health services in the country it will be a formidable task to set up an effective system for the diagnosis and treatment of STDs. UNDP certainly has an interest in seeing such a programme established, although it would take it away from its developmental concerns, and it would seem preferable to leave the analysis of need and programme development to others. Except for a particular concern which UNDP has and which is not currently reflected in the approach of other agencies to this matter. This relates to the concerns expressed above, ie. the high level of HIV infection amongst women and the need to reduce it. There is a good deal of evidence that STDs [together with other physiological and culturally determined factors] are important in explaining high infection rates in women. Since most women are never subjected to internal examination by medical practitioners STDs and other infections remain untreated as a consequence, and this raises the risk of transmission of HIV. It is, unfortunately, only too likely that a programme for STDs, if established in Uganda, will neglect the critical needs of women. So UNDP has an interest in being associated with the development of a programme for STDs on these grounds alone, but in order also to enable Uganda to better deal with the economic and social impacts of the epidemic.

e. There is one important sub-group in the population who are perhaps peripheral to the main concerns of UNDP. This is the military, who may have high levels of seroprevalence and who may play a significant role in transmission. This is an area where other agencies [USAID] are active, and there may be little need for UNDP to become involved. This is, nevertheless, one area where UNDP may want to be involved in the process of training [counsellors particularly], and perhaps in the development of care. The military do have arrangements for those who are infected and who at some stage are retired from the service, but there is a need to look at how individuals and their families cope. There is a complex set of issues here; of IEC activities, STD programme development, HIV testing and ethics relating to it, condom supplies, counselling, care and medical needs. The military are important because of their relationship to the rest of the population; they are a mobile and sexually active group of young men who wield a great deal of power, and as such are in a position to do much harm to the ACP of Uganda. It needs hardly to be added that they are also deserving in their own right of a comprehensive programme for HIV prevention and care.

f. There are some 150,000 refugees in Uganda who are the responsibility of UNHCR. Some are recent arrivals and others have been long settled in Uganda. They are a particularly vulnerable group for all sorts of reasons, and there is the real possibility that their needs in respect of HIV prevention, care and income support, will not receive the attention these deserve. Many factors are likely to combine to make refugees, and particularly women and young adults, very vulnerable to HIV infection. There seems to be little evidence that their multiple needs are being addressed by UNHCR, who do not have the capacity for dealing with these matters. This is an issue requiring inter-agency discussions and consultations with the UAC.

g. There is a great deal of IEC activity already, and WHO has an expert in the country and is considering the secondment of another person in this field to the UAC. Others are also active in the area, and UNICEF has announced that this is a priority interest. Other UN agencies, such as UNFPA have activities in progress and planned. Also active in the area are NGOs such as The AIDS Support Organization [TASO], The Uganda Red Cross, Experiment in International Learning [EIL], and so on. There is no lack of activity, but as we have seen above there can be doubts as to its effectiveness. There are general problems here, and they are not only those which are raised above. These include constraints on the local development and production of materials for IEC purposes, and for use in training and counselling. This is raised as a matter of considerable importance at this point in the Report, rather than in the section below which deals with organisational matters. This is certainly an area where UNDP has an interest in the local development of capacity, both of technical skills in developing materials and in production, but only after a capacity needs assessment. A related matter, but one which the mission did not look at, is the role of the Media in IEC. This is certainly deserving of separate study, since capacity constraints in this area are undoubtedly important.

There remain two other areas where UNDP might have some involvement, but which are judged to be of low priority. These are -

h. It is the case that risks of infection with HIV through contaminated blood and blood products are very high. It is also true that in Uganda only a small percentage of transmission is due to this factor and, as noted above, about 90% is heterosexual in origin. At the present most blood is screened for HIV etc., and the blood supply is considered more or less secure. Most of the costs of this programme are met by the European Community [EC], and they are also meeting the costs incurred through the setting up of extra blood screening centres. While the EC has no firm plans for continuing support it is the case that for the moment at least the system is being financed, and is apparently working well. There is some evidence that blood is not reaching hospitals in rural districts, but this distributive problem needs to be addressed by others. The cost of a unit of blood is very high - a unit cost of 42$. This needs to be compared with per capita health costs for Uganda of about 3$, and recent estimates of the World Bank (WB) that the average cost for drugs etc. per AIDS case are approximately 14$. There would appear to be important issues here of the efficiency of resource allocation. One conclusion is that UNDP should not get involved in blood screening activities. With one caveat; the Nakasero Blood Bank hopes to establish a panel of donors [Clubs], which ought to reduce the cost per unit, and act as a vehicle for IEC. This is an interesting proposal and is one which UNDP might well assist. The start-up funding ought to be quite small, and there is the possibility of piggy-backing this activity on more general IEC and behaviour change interventions.

i. Reference is made above to the AIDS Information Centre (AIC), and doubts were expressed about the scale of resources being absorbed into this activity. It is suggested that UNDP should not support the AIC unless it can be shown that various conditions are being met with respect to behaviour change and other benefits from testing. Carrying out such a Study would be a complex matter, but ought to be a prior requirement for any UNDP involvement. If it can be demonstrated that AIC activities do have significant and worthwhile effects on behaviour change or other important benefits then a case might exist for UNDP support. Possibly UNDP could help with limited finance for any study which is undertaken, although this could perhaps be left to USAID and AIDSCOM.

 

B. ECONOMIC AND SOCIAL IMPACT

The earlier Section I.C on Impact Projections more or less sets out the agenda for activities, but is no more than a brief summary of possible outcomes. It should also be noted that the WB Study [1991] has value mainly as a general statement of the issues, and does not in any way take the analysis of impacts sufficiently forward. It follows that detailed studies of the economic and social impact of the HIV epidemic are a pre-requisite for policy interventions by UNDP and others. This requirement does not preclude all activities for ameliorating the current impacts on the economic and social system, such as for example the Micro Projects Programme to Combat AIDS, but it does imply that at this stage much of UNDP activity will be preparatory rather than substantive. A constraint, which has to be removed, relates to the national capacity to develop the required insights, and to be able to undertake studies of the multiple ways in which the social and economic system is affected by HIV and AIDS. Developing these capacities and professional skills is addressed below in the Section on Strengthening Organizational Structures. Matters relating to the Health Sector are partly dealt with here but also in Section III.C. This may be confusing, but it seems, on balance, preferable to organise interventions on a functional basis.

1. Micro Projects

The Micro Projects Programme to Combat AIDS [UGA/91/005] is a pilot project which aims to reduce the adverse effects of HIV infection through the provision of financial resources and technical assistance. The target groups are those households and communities considered to be most vulnerable to the adverse impacts of HIV, and the Project involves NGOs and CBOs actively in the identification of appropriate and supportable activities, as well as in their management and evaluation. This is a project which is well deserving of support as an innovatory attempt to meet the needs of vulnerable groups through income generating and other activities. There are various ways of strengthening the Project, including the following. Firstly, it is absolutely crucial that the participation of women be a requirement for both the National Steering Committee and the District Selection Committees. This should be achieved through a minimum percentage of the membership, say not less than one-third of the total. Secondly, the performance of this Project will depend on the quality of the inputs from NGOs, CBOs etc [the sponsoring organisations], and this is recognised through the provision for some technical assistance to these groups. This does not look as if it will be enough, and provision needs to be made for much more than is proposed. Furthermore, the planned technical assistance is too narrowly focused, and the targeted beneficiaries who are expected to identify projects, formulate and effectively manage these, are going to need much more assistance than is provided for in the Prodoc. It is well known from other income generation projects that weaknesses at the level of operation and control are a major cause of failure. Finally, there are no convincing grounds for the exclusion of Rakai and Masaka from the Project, and given that they are currently facing severe problems caused by the epidemic it is suggested that they be included.

2. Sector Studies

It is urgent that Sector Studies be commissioned on the impact effects of HIV. At present what is available are studies which largely depend on secondary information and the application of intuitive reasoning. This is no substitute for empirical research which directly addresses the important questions raised by the epidemic. There are a number of key sectors where the impact will be severe, which are critical for the performance of the economic system, and including sectors which are important for reducing HIV transmission and for providing care for those affected.

The Sectors identified are :

a. Agriculture

This supplies most of the food and almost all the exports of Uganda; most of the population is dependent directly or indirectly on this Sector. So far the impact studies which have been done, such as Barnett and Blaikie [1990] and the World Bank [1991], provide little more than a sketch of the probable responses and distribution of effects on Agriculture. There is an immediate need for detailed analysis of the ways in which production will be affected by changing labour supply availabilities, including the effects on factor utilisation, production technologies, crop diversification, food availability, factor and output prices, and so on. In part this means collecting and analysing much new data, District by District. Plus observing the ways in which farm systems are responding already in areas with high HIV prevalence such as Rakai and Masaka. These data are crucial for the formulation of policies for meeting the needs of the agricultural sector - both in terms of production quantities; changing patterns of production [with additional needs for some inputs, such as fertilisers and pesticides]; the impacts on land use [with the possibility that land may be uncultivated and untended causing land degradation]; and the impacts on farm populations. The generation of estimates of the most vulnerable systems of production and most vulnerable households are crucial for effective policies for planning for the impact of the epidemic across a wide spectrum of concerns. The latter include issues of nutrition, food security [and food storage], the changing pattern of labour use [and the impact of this on households dependent on rural labour markets], changing patterns of land ownership [as assets are liquidated to meet health costs in affected families, and land is redistributed at death]. What are clearly needed are integrated studies which identify the inter-relationships, and establish the main areas where policy interventions are needed. But time is important, and it will be necessary to use Rapid Appraisal Techniques wherever possible so as to get the information and recommendations to policy makers without delay. The focii for UNDP interventions would be Ministry of Economic Planning and Development (MEPD) and Ministry of Agriculture.

b. Health

We have seen above in Section I.C on Impact that this sector is already facing intense demands, such that many patients with HIV related illnesses are largely untreated by the formal health care sector. It seems also true that HIV-related illnesses are crowding out other categories of treatment, with results which cannot be considered optimal. This requires a Health Sector Study which looks at the strategic options, and assesses both the needs of HIV infected persons and the best ways to meet these, given the expected resource constraints facing the health sector [both governmental and private]. Inevitably the formal health care sector will be left with important responsibilities for treatment, both in terms of demands falling on different parts of the health care system [particularly on lower level facilities], on essential drug requirements, and on the training of doctors, nurses, etc. There is little point in predicting forward the present state of affairs, in that this would represent an abdication of responsibility. What is needed is a full assessment of health needs and the best ways to meet these, given both human and non-human resource constraints. To this end there will have to be a significant strengthening of the MOH in terms of its planning capacities. It goes without saying that one of the outputs of such a review would be an assessment of the impact of HIV related illnesses on the capacity of the health sector itself, given that human resources will, indeed already are, being diminished through morbidity and mortality. This is perhaps an area where WHO and the WB may be thought to have primary interests, but UNDP certainly ought to be involved both in helping Government in activities aimed at redefining strategic health care policy, and in strengthening the general planning capacity of the MOH.

c. Education

This sector is facing huge problems, and the existing challenges are already enormous. As we have seen above the performance of this sector in terms of enrollment and quality of education leaves much to be desired. Yet, like Health, it is a crucial service sector with critical responsibilities for human resource development and its maintenance. As the human capital of Uganda is eroded further by HIV and AIDS the ability of this sector to educate for replacement of lost skills will become even more important. It will, like Health, be facing the problems of AIDS mortality, so that its capacity to maintain activity will be declining. Furthermore, this Sector has to play a major role in creating awareness of HIV and in the forming of appropriate behaviours amongst a critical segment of the population - the next generation, which is as yet largely uninfected. There are multiple issues here which need attention; some are being addressed by others [such as the programmes of UNICEF], but there are important planning issues which are not. Planning for the Education Sector has to be concerned with, for example, the effects of the HIV epidemic on the school age population [the numbers to be educated], the impact of HIV related illnesses on the supply of teachers [and their training], the need at secondary and tertiary levels to plan for replacement of critical skilled and professional human resources, issues to do with the financing of the sector [under the general impact of HIV on the economy], the particular problems of groups such as children who are infected and affected by the epidemic, and increasing numbers of poor families. There is a range of important policy and programme matters where forward planning is going to be essential, and UNDP should certainly assist both the Ministry of Education and the UAC with technical and planning support.

3. Community Monitoring

Much of the foregoing reflects partial ways of measuring the impact of HIV, and while it is essential to look at effects in this way it is not sufficient to do so. What are also needed are comprehensive methods of recording impacts and social responses, ie. some kind of cross sectional picture which integrates effects and responses within a defined space. For most households this space is going to be the community, which is itself a concept with ill-defined boundaries. In a largely rural society such as Uganda this will usually be co-terminus with the village, and what are needed are methods for observing and recording the multiple impacts at this level. Only at this level of disaggregation will it be possible to identify affected households with their specific needs, their problems as they change over time; the inter-household relationships and attitudes; the development of social caring processes, including the activities of CBOs, NGOs, churches and the like; and what is happening to rural production and the use and distribution of resources. In short to develop ways of representing and analysing communities who are facing the social and economic impacts of HIV. Since most of the adverse effects of the epidemic are going to have to be handled at the community level it follows that policy has to have detailed pictures of the problems that communities are facing, how they are coping, and what are the effective programme interventions. To achieve this objective UNDP should develop, in consultation with the UAC, a programme of Community Monitoring, with an initial set of differentiated communities as pilot studies. This will require an initial piece of research into the problems of establishing such a community monitoring programme.

 

C. CARING

This is in many ways the most complex issue to address, and in many ways also the most important. Many aspects of health care have been raised above, particularly those dealing with the formal health care system, both access to it and the quality of care. It is not intended in this section of the report to add further to what has already been written, for it is obvious from the foregoing that, in the case of Uganda, most of the care of the infected and the affected will have to be at the community level. Indeed one of the major challenges policy makers in Uganda have to face is how to ensure that resources do reach communities and households where they can have most impact, and where needs are greatest.

In these circumstances the activities of NGOs, CBOs, churches and other institutions have critical and vital roles to play. These institutions have already proven their value, being active in multiple directions in meeting the needs of society. The objective here is not to review their activities, and indeed much that the Report has to recommend by way of specific interventions is reserved for the following Section, where attention is directed at ways of further raising the effectiveness of the NGO sector broadly defined. But there are three very important areas where NGOs are going to be central to meeting the challenges posed by HIV, and indeed where they are already demonstrating their ability to innovate and be effective.

1. Community-Based Care

In an ideal world it would be possible to wait for the results of any Community Monitoring system such as recommended above, but the problems are too urgent for this. Actions are required now on how best to meet the medical, social and economic needs of households and communities in an integrated and sustainable way. Fortunately there are examples of how this might be done, and these cases might provide the basis for a national programme. The first step would have to be a much deeper evaluation of the two cases to be presented; to identify their strengths, and to consider the problems facing Uganda in replicating these "models" to other Districts. The initial focus of UNDP would indeed be to undertake the commissioning of such an evaluation, with the intention then of directly funding the development of those capacities which are essential for extending the programme to other Districts. This ought to be a major area for UNDP activities in meeting the challenges of HIV in Uganda.

Both of the cases are based on non-governmental hospitals. They are Kitovo Hospital in Masaka, a District of high infection and very severe social and economic problems, and Aber Hospital in Apac District where HIV infection is thought still to be low . Both hospitals have had to face the same problems: patient care needs which threatens to overwhelm the facilities, crowding out other patients; a need to find alternative ways of meeting the medical and social needs of persons with HIV-related illnesses, within the bounds posed by tight resource constraints of beds, drugs and staff; and how to integrate health care and other needs into a community framework. In part because there is no real alternative to doing this, and in part because this is actually better for the infected and affected. Integration of care, the creation of support networks, income generation schemes, IEC and behavioural change activities, support for orphans and destitute families, and mobile teams of trained personnel [both medical and non - medical], have all formed part of their developing response. What is being achieved is remarkable, but they are of course also resource constrained in what they can achieve, and the numbers they can reach. Their capacities are clearly limited, and the constraints of space, trained counsellors, IEC materials, transport, and the like all need to be relieved. In part capacity building is about relieving these constraints, and doing so for these hospitals and others would in itself be a valuable step forward. But what is being primarily recommended is more than this: it is the evaluation of models of integrated care which have evolved over time in the face of the epidemic, and the replication of these models in their primary elements to other areas of the country, where the model can be effectively applied. This second stage will require substantive capacity building activities by UNDP and others. In a sense, it means using these cases both as models and as centres which could be given training and other responsibilities. In the latter role, they could be seen as "poles of community development", playing active roles in their own replication.

2. Orphans

This problem figures in all discussions of HIV in Uganda and as such can be briefly dealt with in this report. The number of orphans, as defined in Uganda as a child having lost one or both parents, is thought to number somewhere between 600,000 and 1 million. Many of these are the result of war and other factors, but this in no way changes the scale of the problem which currently exists, and which will become even larger in the coming years. There are many activities already in this area; the UAC sees it as a matter of great concern and a special committee will develop policies and interventions; and there are NGOs such as Uganda Community-Based Association for Child Welfare (UCOBAC) and Uganda Women's Effort to Save the Orphans (UCOBAC) who have focussed their efforts in this field. The issues are highly complex and the potential solutions by no means obvious. Some of the interventions raised earlier in this Report, such as those for a Community Monitoring System and impact studies of Health Care and Education, will partially address the needs of orphans, eg. in considering the issue of school fees. Valuable as these interventions and insights might be they are certainly not enough. This is an area where UNDP ought to be involved in capacity building, but what to do and how to do it is by no means obvious. There is a clear preference in Uganda for non-institutional solutions to the needs of orphans, although there can be no reason to suppose that this is everywhere and for all children both feasible and the best option. The national response has so far been ad hoc, and what has been done is an insufficient guide for future policy and appropriate institutional structures for the delivery of support. It is strongly recommended that before UNDP develops a programme in this area that a comprehensive study be made of the whole set of issues raised by the large and increasing number of orphans. Such a study should not focus to any degree on estimating future numbers [having some idea of numbers and their distribution is not the core of the problem], but on identifying needs and the ways in which policies and institutional structures can meet these. UNDP in consultation with the UAC should urgently commission such a study, and then develop with NGOs, government and other agencies, a programme of work.

3. Community Development

This is not a useful operational category, but it is desirable to identify it nevertheless in order to re-emphasise its importance. In practice much of the foregoing is about how to develop and strengthen community involvement in all areas, and the need to refocus the allocation of resources away from urban to rural groups, and away from formalised institutional structures to informal and localised ones. How best to do this, and the identification of priorities, will be the outcome of the recommended studies and policy related discussions in Uganda. There is much already being done at the community level, most obviously by TASO, the Uganda Red Cross and by the churches, which is extremely valuable, but highly constrained in terms of geographic and functional coverage. How to expand these activities, both spatially and in other ways, is by no means obvious. What is presently urgent is identification of needs and constraints, so as to be able, for example, to expand the numbers of trained personnel available for counselling and for behaviour change programmes. This is a matter which is also dealt with below under Organisational Restructuring.

 

D. STRENGTHENING ORGANISATIONAL STRUCTURES

This is potentially and actually a hugely complex problem and the following should be seen for what they are - tentative recommendations based on unscientific observations. These are thought, nevertheless, to be of value, not least in pointing in the direction of positive and productive change. For purposes of exposition only it has been necessary to identify two categories - Government and Non-Government - but obviously these are in many ways overlapping in their areas of interest, and are and should be seen as complementary. Many of the interventions above entail new functions and changing responsibilities for organisations, and the following should be seen as only a sub-set of these changes which are mainly organisational in their nature.

1. Government

The Uganda Government has recently introduced major structural changes with the establishment of the Uganda AIDS Commission and Secretariat. This signals the commitment of the Government, and its intention that policies for the HIV epidemic be both multi-sectoral and multi-level. However, there remain unresolved issues about structure and function to which attention is turned below. The ordering of the following discussion can be considered as representative of the importance which is attached to particular levels of capacity building activities.

a. Local Government Structures

It is a historical fact that most UNDP capacity building has been focused at the level of Central Government, to the relative neglect of Local Government. In the case of the HIV epidemic all levels need to be strengthened, but the problems are much greater at the local level. This is scarcely news, and there are many existing proposals of a piecemeal nature which aim to remedy the observed deficiencies of poor policy formulation and implementation at District and County levels. There is generally too little understanding of the developmental effects of the epidemic, and too little integration across programmes - this is the familiar problem of verticality. The UAC is considering the establishment of Field Offices in a limited number of Districts; UNFPA has looked at the desirability of locating Population Officers at the same level, and there are proposals under consideration for economists from the MEPD to be located at the District. There are already many functions relating to health and development located at District level, some of these concentrating on the delivery of medical services and health education. This is also the level at which, at least in some Districts, NGOs are also operating, and need to be encouraged to operate. It is also clear that the Resistance Councils (RC) have, and are expected to have, important functions and responsibilities, but that these are not being effectively utilised. RC leaders in particular need training, and especially leadership training. The importance of community action and social mobilisation is at the core of this Report, and for this to happen there has to be a major strengthening of Local Government structures. In part this means shifting more resources, financial and human, to the local level, which will require different organisational structures with new perspectives and priorities. Effective structures have to be built; in part through a comprehensive evaluation of existing and proposed systems, and support for a process of organizational reform. UNDP has an important role to play in bringing about these very critical reforms.

b. The Uganda Aids Commission

The Commission and the Secretariat have been in existence for such a short time that their roles, functions, resource constraints, needs and responsibilities, are all still evolving. The WB has been involved in needs assessment at the level of the UAC, and in respect of proposals for the setting up of AIDS Units in the various Ministries. In many senses, therefore, this is the wrong point in time for UNDP to assess what its contribution to the UAC and to individual ministries ought to be. The role of UNDP in these circumstances should be to continue with its general support for the Uganda Government's initiative, and to look positively upon requests for assistance. To a degree any response will need to be set within a framework of priorities, which is precisely the purpose of this Report. What has been argued above is that effective programmes across the spectrum of needs have to be concentrated elsewhere, particularly at the community level.

This leaves the UAC with major strategic responsibilities which are important for the development of effective policies for prevention and care, and for responding to the multiple consequences of the epidemic. To perform these functions the Secretariat has to acquire a high level of professionalism in the areas it has already identified as crucial; to utilise consultants where internal skills are unavailable, but generally to keep itself a lean and non-bureaucratic institution. UNDP should, once needs have been formulated in these terms, be willing to provide training and consultancies. For example, assisting the UAC in developing research programmes, especially in the social sciences, and in helping the UAC acquire professional understanding in the areas of project development and evaluation. It being understood that these skills are needed at the level of the UAC, but not so that these activities are undertaken by the Secretariat. Thus the UAC has to be able to advise on research priorities, to be able to review research output, and to ensure that this research informs policy formulation and programme development. To become, in short, the centre in Uganda for informed discussion of HIV, and the source to whom those inside government and those outside government naturally turn for advice on policy and programme development.

c. Ministry of Economic Planning and Development (MEPD)

This Ministry has critical responsibilities and, as such, needs to be informed and to have insights into both the causes and the effects of the HIV epidemic. As a planning ministry it has to ensure that other ministries are aware of the costs, social and economic, which Uganda is both bearing now and will inevitably also have to face in the coming years. Government needs to plan both for the erosion of its own capacities due to HIV and for the changing levels and types of services which will face Departments. As noted above the WB is considering the needs of various Ministries, including those associated with the establishment of AIDS Units. It is crucial that MEPD in particular develop a programme of training for its professionals, especially economists, so that it can modify its internal planning activities to take account of HIV, and ensure that this is also true of other Ministries in their planning roles. Since the MEPD also plays a major role in directing and co-ordinating donor assistance it is doubly important that it be aware of and understand the specific requirements for effective ACPs. To this end it is essential that senior staff and professionals be provided with the opportunity to participate in workshops, etc. dealing with HIV, and to undertake [participate in] studies of the socio-economic effects of HIV.

2. Non-Governmental Organisations

It is now readily agreed by everyone that NGOs, CBOs, churches, etc. are central to policies for prevention, for care, and for activities which aim to limit the economic and social costs of HIV. This is evident from both the analysis and the recommendations made above. Organisations such as TASO have become models for institutional developments throughout the world. An example of what can be done for the infected and affected, for prevention, for income support - across the whole spectrum of activities - by individuals of commitment and determination. Similar qualities are present in other Ugandan NGOs, with the Red Cross, the Catholic Church, UCOBAC, UWESO, and countless others, active in many directions and many areas of the country. A recent UAC inventory of NGO activities is several inches thick - a testimony to their extensive involvement at all levels.

Much has been done, which needed to be done. But the growth of NGOs has been organic, in some directions and not in others, with a regional spread which is very uneven. So also with performance, where it is evident that with growing responsibilities and programmes, in areas such as management and financial control [costing generally], and in monitoring and evaluation, there have emerged real weaknesses. This is unsurprising, and indeed some of the NGOs have already undertaken internal evaluations, restructured management, and considered strategic plans for the future.

The issue for UNDP is how can it help these organisations be more effective in meeting the challenges posed by HIV, and at the same time encourage independence and growth in response to needs. What is undoubtedly a prior requirement is an evaluation of what NGOs are presently doing; in what areas are they strong and effective/ineffective; what are the current constraints facing these organisations [of management, of planning, of project evaluation, of research, of cost analysis and control, etc], and how can these be tackled [by whom? through collaboration? through establishing specialised service agencies for management training, project evaluation, performance monitoring?]. Where is there a need for rationalisation of activity? Are there activities which are underprovided and, if so, why, and how can obstacles to provision be overcome? This is a major task to undertake such an evaluation, and to ask the questions, "What can NGOs do best?" and, "How can performance be improved?". UNDP should offer to finance such an evaluation, and then develop a programme of support for such institutions through consultative processes so as to improve their effectiveness. These activities should have a very high priority in any ordering of UNDP activities in Uganda.

 

 

IV. OPERATIONALISING ACTIVITIES

 

A. PROGRAMME APPROACH

The previous Sections have dealt partly with description and analysis, and partly with principles. So far there has as yet been no explicit consideration of operational implementation of the UNDP Programme on HIV for Uganda. The purpose of this Section is to briefly rectify this omission, but to do so in a fairly schematic form. The argument for not dealing in detail with some aspects of the Programme are set out above where it was suggested that flexibility in design and in programme implementation are both desirable. While the details of specific activities remain to be resolved and will have to be established through programme and project discussions, the overall balance of the UNDP Programme - the areas for UNDP concentration of its activities - have been strongly identified in Section III.

It is possible for there to be misinterpretation of what is being proposed by way of a UNDP Programme for Uganda, and it may be useful to state unambiguously what it is, and what it is not. The Programme is not an alternative National AIDS Control Programme (NACP); and it should not be seen as in any sense a parallel programme. Nor is it separate from the NACP, but should be viewed as integral to this, and fundamentally part of the nationa